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Sunday, March 20th, 2011
11:48 pm - Chronic and Creative?

Hi, I am a CFS/ME sufferer who has just created a community for sufferers of chronic illness' to share their creative works.

If you are interested in joining, the com is here: chronic_creator

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Thursday, January 27th, 2011
4:59 pm

has anyone here experienced migraines during pregnancy? i'm nearly 7 months pregnant and have been struggling with migraines for the past couple months. i'm not allowed any meds specifically for migraines as they told me that they are not safe during pregnancy. my OB gave me lortab and phenergan tablets, and that helps if the headache isn't too bad.

if that doesn't work, she has told me to go to the ER. they have given me stadol shots and those only work for a few hours. the best thing i've had is nubain, which i used to get before i was pregnant. but it depends entirely on what doctor i get which meds they want to use. it's hard to wait in the ER and not know if what they give you will help!

if any of you have experienced this, what did you do for relief? i went to the ER one week ago and got the stadol shot, fell asleep from it and woke up with a worse headache. it hasn't gone away all week and i can't decide if i want to chance going back to the ER. i'm miserable.

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Friday, February 27th, 2009
8:21 pm - Yoga Hurts

Has anyone ever had a bad experience with yoga, even if it only happened once out of 10+ classes?

I'm only doing yoga because it's part of a class for my major. Yoga usually aggravates me in other places, but today's experience was out of the ordinary. Slight light headedness would have been normal, but today found me EXTREMELY DIZZY to the point where I had the sensation of leaving the room. Could it have been from more than just a stuffy head and odd music?

All comments greatly appreciated as the experience frightened me.

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Friday, January 16th, 2009
12:03 pm - Drug question

I was in the doctor's office for a routine med check and picked up a magazine in the exam room while I was waiting.  Lo and behold, it had information on Chronic Daily Headaches and the 4 subtypes they have.  In one subtype, it recommended Indomethacin as a solution to the headache.  I just got a prescription for it, as we have tried everything else. Having been through a multitude of drugs in the past 8 years, I'm not terribly optimistic, but at least it's something different.   I realize it's just another NSAID, but has anyone tried this and had any good results for chronic headache? 

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Monday, November 24th, 2008
10:22 am - Tracking Software

Has anyone found a free pain tracking program?  http://www.giveawayoftheday.com/ has a "home" version of Smart Diary Suite, but the home version doesn't let you track pain, therefore is useless to me.  The ultimate version costs $70.  So... since I see that something that cool actually exists, I was wondering if anyone has seen a freeware that does the same thing?

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Sunday, November 2nd, 2008
6:09 pm - Ice Pick Headaches

Some of you may already be aware of these, if so, I apologize for the duplication of information. However, I just found this article and was interested to learn of these headaches. I always assumed that the pain I was experiencing was just a normal part of life, and something to be tolerated. Instead, it sounds like that is not necessarily true. Accordingly, I thought I'd share this article in case others share my experience of these headaches and also assume that they are "normal." I know that, as someone who experiences too many headaches, I often get complacent about pain, and it appears that this form of head pain may be another example of that.
Read and enjoy!

current mood: cold

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Tuesday, June 3rd, 2008
8:39 am - Possible help for some


My niece, Dena, has been having great results with a new chiropracter she started seeing.  He is a National Upper Cervical Chiropractic Association(NUCCA) certified chiropracter.  She's completely sold on the procedures he uses. I have yet to see him because his main practice is about 400 miles away and I don't really have the gas money at this time. BUT, with her having such wonderful results, I thought I would post the website so those interested could find a practicing doctor near them. http://www.nucca.org/ is the main site, http://www.nucca.org/locate-a-doctor is the direct link to finding one in your area. 

Dena used to use medicine for her headache practically every day, many times several times in a day.  Now, she's down to a couple times a week, less when she's just had a treatment. Still not perfect, but a LOT better than any medication ever did for her. Just thought I should share since it is an option.

For those of you used to "bone-cracker" chiropractic, this is much less movement and painless. She says she can hardly tell that he's done anything, except she feels better.

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Thursday, March 20th, 2008
10:51 am - Headache since i can remember.

 Im kinda nervous to start exploring this  burden in my head. I fear that i will never get rid of it.

My name is Marty, im 28 and i feel that ive had a headache forever. There are times when i can't stand the pain in my whole head. Other times it's right behind my eyes. Ive have sinus sergury and that really didnt do the trick. I can shake my head and it really feels lke i stir up that pain thats settled down in my head. Most of the time it's hurting. I fear that it is coming on strong eneryday. When it does it hurts in different places at different times.If i turn my head upside down to look under anything its always there. Ive had all kinds of meds in the past for adhd, depression, anxiety, all kinds of things. Ive battled alot of things. Now i have a fear of axiety thats feeds it. Im tryin to stay on topic. What imsayin is i can't take those mood stabelizer's and anti-depressants cause they have given me alot of problems.
thanks thats all i have for now.

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Sunday, March 9th, 2008
10:01 pm - Bad week

I've been having a LOT of trouble with my head the last five days.  Stabbing pains that come from nowhere and almost make me pass out, migraines that medicine won't touch, my regular constant headache(which I've had 8 years now) has been more painful than usual, too.  To top it all off, I think my head is swelling.  I got new glasses about 3 months ago.  They have been really comfortable and never pinch my head.....until today.  All day long the glasses have felt like they are digging into my head, particularly behind my right ear.  I don't even know if it's possible to have swelling like that, but I can't really think of another reason for this to happen suddenly.  I've not bumped or dropped my glasses and they do not look bent.   Has anyone experienced something like this from headaches? 

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Wednesday, February 6th, 2008
1:16 am

Hi, i desperately need some help or advice or anything:

I am 26 yrs old, have had both migraines and tension headaches since i was 11 yrs old, so for the last 15 years.

It used to be literally every day i would have a headache, then it tapered off for a while, BUT as of the past two years i have been getting extremely painful tension headaches every single day, with the only break being migraine headaches;

The migraine headaches have the symptoms of visual disturbances a few hours before the migraine starts, extreme sensitivity to light and sound, very extreme, aversion to food and smells, sometimes (usually) my right side of my face droops a little as in, my eye droops, i cant fully open that eye either, not hugely, but enough to be noticeable, my speech starts to slur, at its worse i drool a lil, (just a bit), my balance goes completely and i run into walls, i cannot form sentences, and basically for all appearances, i seem like i'm very drunk. I get these about once a week, if i'm lucky once a fortnight.
Whether i have an actual migraine or "just" a headache, i am usually in a great deal of pain.

I dont know what causes these headaches.

Now i am very sick of it. I want it to stop, i can only afford to see a free doctor who doesnt DOCTOR so much as prescribe and so all i get is mersyndol forte, which is 450 mg of paracetamol 30 mg of codeine and 5 mg of doxylamine succinate, he will prescribe other things, i just need to know what to ask for. These pills rarely even stop the pain and when it does, i have to take a lot.

Please, is there anything else i can do, or ask for or ANYTHING? I havent had any scans or tests or anything, basically i need to know what to ask for so i can make him do it.

thanks in advance

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Thursday, January 31st, 2008
12:00 am - Newbie post.

Hi. Today seems like a good intro day for a headaches community, so I figured I'd just say hello and introduce myself.

I'm 28, and aside from pretty terrible migraines, in pretty good health. I live in NYC and work at an investment bank, which means 12-14 hour workdays, six days a week. I also take care of six kids, which is a long story that ends with my fanatically Catholic sister having a nervous breakdown and leaving her kids with me. So basically when I get a migraine, it keeps getting compounded with busy and hectic workdays and loud kid-filled evenings. I get them on average once every 4-6 months, I guess, which isn't really that bad. They didn't tend to be very bad at all.

This particular time around, I've had a migraine for the last 2 days, just about. I've been all but fired because of that and some other factors that compound to me being in shitty shape when I'm at work. Yesterday I nearly blacked out in my boss's office and then threw up in front of him, leading to him pretty much giving me the ultimatum of "make your headaches go away or you're fired." So, I guess I'm fired. I stayed home all day today and threw up a bunch more, which is super awesomely fun, really. I took some pain pills that do pretty much nothing. I've tried anything from Excedrin Migraine to Vicodin, and it all just makes my liver hurt in varying degrees but does nothing for my head. Right now it's let up a bit so I just feel like crap instead of like a vomiting crap, so I figured I'd type this up and see if anyone had any suggestions. I've tried meditation/yoga, swimming (which actually helped a fair bit, but I tend to black out lately whenever I have migraines so I'd probably drown. ha.), pills... Anything in particular that worked for anyone?

Also, I'm far from being a doctor... does anybody happen to know if it's unusual/not a good sign for migraines to get progressively worse? They were self-diagnosed, so it's possible that they aren't migraines. I came to that conclusion just because they really fit the bill (tunnel vision, nausea, light sensitivity, blah blah). But they seem to increase in intensity every time. Over just the last year, they've gone from a creepy aura type thing with a kind of crappy vaguely nauseous feeling and a slight headache to something that makes me want to scream, and from which I almost always black out at least once, and throw up no matter what I do about them. (Including a few trips to the ER.) They've also increased in length from 2-3 hours to 2-3 days. Any thoughts?

current mood: sick

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Thursday, January 24th, 2008
12:35 am - meds question 2 :)

Since I didn't get any response to my last post (not unexpected, cluster headaches and CPH are pretty rare) maybe I should broaden the net :)

What all meds have you been prescribed for headaches, both preventative meds, and stuff you've taken during the headaches, and how have they worked?

And how do you go about getting your doctor to give you enough meds so that you are functional?


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Wednesday, January 23rd, 2008
8:24 pm - Getting Worse

Hi, sorry for posting so frequently. This tension headache is really getting worse. I didn't have any other symptoms earlier, but about an hour ago my vision started to get really warped, and when I tried to stand up everything went black. I think I almost passed out. Haven't gotten a chance to see a doctor since my university clinic closed at four. Any suggestions? The wierd thing is, it was gone all day. All of a sudden its back and worse. Could this be from high blood pressure?

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10:23 am - Sinus Buster??

Has anyone tried this stuff called SinusBuster?  It's a hot pepper nasal spray.  I was thinking about giving it a shot, but wondered if anyone had ever tried it.  Sinus Buster page here.

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8:19 am - Cluster headaches (CPH)

I was diagnosed w/ CPH about... 6 years ago. Ever since, it's been a fight to get my doctors to be aggressive enough with pain control that I can get through my day to day life. I'm often so crippled by pain that I can't work. I can't do anything but pace and bang my head against a wall until it blessedly goes away.

So, for anyone here who has Cluster headaches or CPH - what all medications have you taken for them, and what has helped or not helped? And how do you get your doctors to take it seriously enough?

thanks. I'm so frustrated, taking a wine bottle opener to my skull doesn't seem like a bad option at this point

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Tuesday, January 22nd, 2008
10:26 pm - Pressure-Like Headache.
alskdjfh_1  Hi, I'm new here...and my head hurts.
A few days ago I started getting this really persistent headache. It feels like something is squeezing my skull at the temples. Also, my eyes and the area around my eyes has been feeling a wierd pressure/ heaviness. I've never had a headache like this before. The pressure gets worse when I blink and I noticed I've been blinking harder than usual. Also, I think it gets worse when I rub my eyes which I'm trying not to do. Has anyone ever had a headache like this? Is there something I should do (besides take ibuprofin)?

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Wednesday, December 5th, 2007
2:17 pm - To dreeeeeam the impossible dreeeam (of having a painfree head)

Hi everyone, I just joined this community. I've been having migraines since I was about 20, but they've only become a consistent part of my life in the past two years (one or more a week). They got significantly worse this summer, due to the stress crazy roommates stealing/burning/drinking things, but I'm in a nice place now and doing better.

My problem is that I have had a migraine or semi-graine (yes, that is a made up word) for the past two weeks. The day after Thanksgiving I had a migraine, and though it decreased and the worst of the pain went away it never really, fully left. Three days ago (Sunday morning) I had a real innovator of a migraine that left me wailing in the shower & my boyfriend wanted to call the ambulance (which I did not let him do, in my family ambulances are for nothing less than heart failure).

I feel like I just need to break the cycle. Most of the time I take my Imitrex/Fioricet, fall asleep and then wake up kinda dopey but much better, but these past two weeks have just been non-stop ow. I know some contributing factors were an irregular sleep schedule & irregular eating habits, the stress of an upcoming concert, and the fact that our boiler is broken & we are heatless which makes my neck tight & stiff.

What has helped: a lunch of sushi with tons of fresh ginger (I felt a hundred times better after that one meal), heating pads, getting back on a regular sleep/food schedule. These help but haven't made it go away entirely and its starting to really get me down.

Any suggestions? I'm taking two Fioricet a day during work so I can function (in a dopey fashion), and am trying to eliminate most triggers from my diet. I've used up all my sick/vacation time for now so I can't really take any time off to see my doc, which is usually my solution.

current mood: cold

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Friday, September 7th, 2007
7:49 pm - Propranolol?

I just saw my doc today...I already take Tylenol #3 as a rescue med. But, I did need something as a preventative. She gave me samples of InnoPran XL, which is the generic form of extended release Propranolol. It's 80mgs too. Does anyone have any experiences or suggestions with this med?

I also take some other meds for Bipolar disorder. Seroquel, Klonopin, Celexa. I also take Valium as needed.

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Wednesday, September 5th, 2007
9:16 am - Depakote and Basilar

Does anyone have experience with depakote with basilar type migraines? Or for any other condition? What have you experienced as side effects?

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Tuesday, August 28th, 2007
3:48 pm - exercises and stretches?

i have been getting tension headaches off an on for three weeks straight, and completely on for several days straight. i have never been prone to headaches, so this is a new and horrible thing for me. my dr suggested physical therapy, so i can learn stretches and exercises that will help. but i am going out of town for a week so i can't start that until the second week of september, and in the meantime i'm miserable. googling is not helping me find anything. can anybody tell me if stretches/exercises have helped you, and if so, what?

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